A mothers desperate plea. What is wrong with our health care system?
Posted with permission of Tino’s family.
I am writing for help.
My son Tino Sandana was admitted to Royal Columbian Hospital on Thursday, May, 5, 2011 and it was quickly discovered that he had a paracardial efusion around his heart and would need to be kept over night for treatment and observation. The major concerns are that he is 29 years old, he has a large cancerous tumor spreading rapidly and they have said it is aggressive.
He is in Intensive Care Unit now because he cannot breath on his own, he needs assistance to use the bathroom. He has had dramatic weight loss since being hospitalized on May 5th up to todays date of May 17.
He continues to decline daily.
I do not understand how after all of these immediate concerns and serious condition he is in that they can say he is not an immediate priority.
The day after Tino was admitted, after tests it was discovered that he had a tumor twice the size of his heart behind his heart in an inoperable area. They did further testing to reveal he has a 99.9% chance of having Hodgkins Lymphoma.
To be sure of the diagnosis they told my family, my son and myself that they would be able to make a small incision through his breast bone and get a piece of the tumor to do a biopsy and try to get a conclusive result stating what the mass is. They have made it very clear to all of us on a daily basis that Tino has cancer. They performed this biopsy on Wednesday, May 11 and by the following Friday, May 13 they said the results were inconclusive. So after receiving that news they said they would have to transfer him to Surrey Memorial for another biopsy to get a larger sample.
They transferred Tino on Saturday May, 14 in the early morning and they said they would be performing the biopsy/surgery – he was never taken in for the biopsy.
We were told then it would be on Monday, May 16 and it was once again cancelled.
They then said he wasn’t actually scheduled for Monday and he is not a priority case, and that he was now slated for surgery for the following day, being Tuesday May 17 at 2:00pm – they have once again put it off and said we will be performing the surgery Wednesday, May 18.
They have told us that because of cutbacks they do not have sufficient staff to perform and arrange the surgery.
The surgeon was there but there was no nurse, so they cancelled again.
They said there was no pathologist, nurses, anesthesiologist available after 4pm, but his surgery was scheduled for 2:00pm and he was supposed to be out at 4:00pm.
I am absolutely disgusted by how the health care system treats its patients. My son is in critical condition being kept in ICU and a normal 190 lbs he is now 140 lbs and needs help sitting up for a young 29 year old who is normally fit and extremely healthy this breaks my heart that this is the type of treatment he is receiving. We were informed by the dietitian that she is extremely concerned that he is beginning to be very malnourished. We have been told information that contradicts everything they have been saying.
And for every time they say they will be taking him in for surgery they fast him for an entire day and tell us late that it has been cancelled. Meanwhile he is growing weaker and it is playing a hard role on his state of mind and overall well being.
I am watching my 29 year old son dying of cancer and they won’t help.
Please help me make sure my son has the medical care he needs.
*update, Wednesday evening:
After several cancelled bookings, Tino finally received surgery this afternoon. The biopsy was successfully taken and it is hoped that a plan for treatment will be in place shortly. His family thanks everyone for their prayers and concern.